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Eating Disorders
Eating Disorders 3.2
The Eating Disorders (ED) Distribution v3.2 was published on 2024-10-02. ED Distribution v3.2 includes 8793 subjects, 7469 of whom have at least one biosample on record at the repository. In addition to case/control studies, the ED Collection includes 1 family study, which includes families that are large and/or multigenerational.
Standard Data & Documentation
Download All- Distribution Bundle [text or excel]: Standard files across disorders, containing demographic, diagnostic, and pedigree information. Sampled (formerly IBX) sample IDs (nrgr_bio_id) and consent level are also provided. Bundle includes data dictionaries.
- Study Descriptions.
- Change Notes.
- Pedigree Drawings.
Additional Data Files
Clinical Instruments
DIGS
Diagnostic Interview for Genetic Studies (DIGS) - The tab-delimited text format DIGS interview files provided below are cleaned versions of those received from the original study investigators. While they retain the record layouts and variable naming of their respective DIGS versions, they have had invalid values corrected or removed, date fields converted to a standard format, and their various missing/ unknown values converted to standard textual metavalues in order to avoid misinterpretation. Further details on the cleaning that has been performed are included in the file "README_Other_cleaning.pdf" included in the download.
The DIGS data for Study 24 was collected by using DIGS Version 3.0.
Other
- Study 24 Clinical Data [text or excel] Includes demographics, DIGS, SCID, YBOCS, EATATE, EDR, DOTS-R, and item-level other instrument data.
- Study 24 Blank Interview Forms
SCID
Structured Clinical Interview for DSM Disorders (SCID) - The tab-delimited text format SCID interview files provided below are cleaned versions of those received from the original study investigators. While they retain the record layouts and variable naming of their respective SCID versions, they have had invalid values corrected or removed, date fields converted to a standard format, and their various missing/ unknown values converted to standard textual metavalues in order to avoid misinterpretation. Further details on the cleaning that has been performed are included in the file "README_Other_cleaning.pdf" included in the download.
Clinical Instruments
Clinical Trial
- Study 96 Phenotypic Data [text or excel] (n=73) includes assessment date, BMI, and obsessionality subscore of the Y-BOCS
- Study 96 YBOCS Checklist Study 96 Y-BOCS with Checklist in pdf format
Clinical Instruments
Other
- Study 129 Phenotypic Data [text or excel] (n=5655) ANGI Eating Disorder Questionnaire – ED100Kv1 data
- Study 129 ANGI Questionnaire ANGI Eating Disorder Questionnaire pdf
Diagnostic Interview for Genetic Studies (DIGS) - The tab-delimited text format DIGS interview files provided below are cleaned versions of those received from the original study investigators. While they retain the record layouts and variable naming of their respective DIGS versions, they have had invalid values corrected or removed, date fields converted to a standard format, and their various missing/ unknown values converted to standard textual metavalues in order to avoid misinterpretation. Further details on the cleaning that has been performed are included in the file "README_Other_cleaning.pdf" included in the download.
Study 24 — Genetics of Anorexia Nervosa
The DIGS data for Study 24 was collected by using DIGS Version 3.0.
Study 24 — Genetics of Anorexia Nervosa
- Study 24 Clinical Data [text or excel] Includes demographics, DIGS, SCID, YBOCS, EATATE, EDR, DOTS-R, and item-level other instrument data.
- Study 24 Blank Interview Forms
Study 98 — The Effects of Estradiol on Genetic Risk for Disordered Eating During Puberty
Study 129 — Anorexia Nervosa Genetics Initiative (ANGI Project)
- Study 129 Phenotypic Data [text or excel] (n=5655) ANGI Eating Disorder Questionnaire – ED100Kv1 data
- Study 129 ANGI Questionnaire ANGI Eating Disorder Questionnaire pdf
Study 133 — Biomarker Discovery in Anorexia Nervosa II
Study 24 — Genetics of Anorexia Nervosa
Structured Clinical Interview for DSM Disorders (SCID) - The tab-delimited text format SCID interview files provided below are cleaned versions of those received from the original study investigators. While they retain the record layouts and variable naming of their respective SCID versions, they have had invalid values corrected or removed, date fields converted to a standard format, and their various missing/ unknown values converted to standard textual metavalues in order to avoid misinterpretation. Further details on the cleaning that has been performed are included in the file "README_Other_cleaning.pdf" included in the download.
Study 96 — Olanzapine Versus Placebo in Outpatients with Anorexia Nervosa
- Study 96 Phenotypic Data [text or excel] (n=73) includes assessment date, BMI, and obsessionality subscore of the Y-BOCS
- Study 96 YBOCS Checklist Study 96 Y-BOCS with Checklist in pdf format